We are writing you all today to ask for your help. We are a happily married couple that has 3 kids.
One of our children is Anakin. He is 5 years old, nonverbal severely autistic and still in diapers. All of his doctors recommended that he needs full time ABA therapy.
In our state among a very few others deny Medicaid paying for ABA. For an hour of Applied Behavior Analysis “ABA ” is $100 and they want him full time Monday through Friday 9-5. That’s about $4000 a week.
Our 19 year old daughter helps us a lot with the everyday life of helping Anakin. Also our 3 year old daughter works hard to try and get her brother to talk or making sure he has a drink as well as being his cheerleader.
We we have a PEC (picture exchange communication) system that we use with him sometimes as well as a token system for getting to do things.
He he is a big fan of music and listens to various styles. He will even hum some of them. It is just beautiful. He loves the keyboard and can learn songs.
He loves his iPad more than anything else. He watches lots of various intros and people showing candy. Biggest thing is watching fire trucks. He likes to look at his iPad through my iPhone camera like in this picture.
My oldest daughter helps out so much because I have hip, back and knee issues and because my son can be a lot to handle at times. Anakin is already 4 feet tall and gonna out grow me soon. He loves being carried. I stay at home with him while my husband works.
Anakin is an eloper and you have to always worry about him running away or getting into harm. He will just bolt if given the chance. He loves water and would probably run towards that first either that or cars. He loves cars.
He is sensitive to certain shirt materials and won’t wear them most of the time. He can’t wear buttons because he will eat them. He has pica and at times tries to eat everything.
Anakin is the happiest boy you will ever see. He makes siren sounds like you could only imagine and likes humming some songs like 20th century fox intro. He is very active and an acrobat if you let him.
We have been approved for “OT” occupational therapy and still waiting on “ST” speech therapy. Denied for “ABA” applied behavior analysis. In process of seeing if food therapy is allowed. All the therapy we are doing with him helps but “ABA” therapy is key to him blossoming.
He is extremely smart with some things but others he has the capacity of a 1 year old.
We are looking to raise $12,000 so we can move to a state that is on the list that will help pay for his ABA therapy. We want to be able to find a place and him flourish in the new state. He has so much potential and we just want what is best for him.
Thank you for your time reading this. If you could help it would be greatly appreciated. If you can’t, at least have us in your prayers and pass this along to someone that might be able to help. Have a great day.
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