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Please help me fight leukodystrophy

Hi there

My name is Isabella, I am 9 months old, I was diagnosed with “Metachromatic Leukodystrophy”. This is a very rare congenital disease that generates a lot of suffering and which has a very poor prognosis. I need a series of exams and possibly being able to access treatments that give me a chance at life or at least less suffering, but with dignity. All this has a very high cost and the health insurance in Colombia does not cover it. This is the reason why this account (In Australia) has been created to collect donations.
The money is managed and watched over by a committee that is in charge of paying for medical services.

This journey has been particularly challenging for my family and we sincerely hope that you will support this cause.


Isabella Parra Perez

(Thank you for the time in reading Isabella´s story and any assistance that you can offer will be greatly appreciated, as this will go such a long way in helping our family financially dealing with this heart breaking situation we now find ourselves in.)

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