Since I had my neck surgery in March 2016, there has been a number of events that have decreased my quality of life. In December 2016, I was diagnosed with Ehlers-Danlos Syndrome (EDS), a connective tissue disorder that effects the collegian of the skin, joints, and blood vessels. Because EDS is misunderstood by many doctors, gaining access to adequate medical care, patients often have to travel to receive quality care.
I have just been given the opportunity to see Dr. Fraser Henderson, the world-leading neurosurgeon for treating EDS patients. I have an appointment on November 30th, 2017. The possibility of being treated by Dr. Henderson is a dream come true, considering there are only a few surgeons in the United States who are very familiar with EDS. I likely have craniocervical instability, along with a Chiari Malformation. These conditions produce a multitude of neurological symptoms such as blurred vision, painful headaches, excessive sweating, nausea, vomiting, insomnia, and many more.
How you can help?
Please donate! I need assistance with travel, medical, and living expenses. Because Dr. Henderson is so specialized, all insurance is out of network. The ability to see this surgeon would give me peace of mind knowing I was getting the care I need to survive.