Hello friends, family and prayer warriors. It pains me to have to write this, but our family is in grave need of help, love and support. More specifically my 38 year old husband Jeremy Peaslee.
At his age of 38 I would have never thought my healthy husband would be so sick and never show any signs of illness. This year has been a whirlwind for Jeremy. He was diagnosed with Alpha 1 antitrypsin deficiency .
This deficiency is a rare genetic disorder,which is passed through the genes from both parents. Alpha 1 results in lung disease and liver disease. As of now Jeremy’s lungs are pretty decent, but down the line will worsen.
However, his liver on the other hand has developed cirrhosis and it is decompensating which basically means that the liver is failing. His body is showing signs of decompensating, such as his ammonia levels are really high in his body and he can’t get rid of it quick enough. He takes a daily regimen of Lactulose medication 4 to 5 times a day.
The Lactulose medication’s job is to get rid of the toxins that are in his body because the liver is not filtering them out due to the disease. Consequently, his doctor gives him 1 to 2 years of life unless he receives a liver transplant. He is now doing all the proper testing to be put on the transplant list.
There is no cure for this disease, and since it is so rare, there isn’t too many studies on it. The Alpha 1 Foundation has been really helpful to us in getting the newest information on this dark disease. The website is Alpha1.org for any of you that want to get a better insight and definition of this disease.
For when he does get his Liver transplant it will take place in Portland Oregon, at the VA medical hospital there. He is going to have a long road ahead of him, which will include numerous doctor visits, such as seeing a cardiologist, hepatologist, pulmonologist, Psychologist, and psychiatrist, which will all take place there in Portland Oregon.
He will have to go to these appointments and stay there at least a week at a time. When he does receive the transplant he will be recovering from the surgery at least 6 months to a year. I will be there by his side every step of the way, and will do everything in my power to make sure he fights this ugly disease for his 3 young daughters( Paige 7, Paityn 4, and Piper 1 1/2). Unfortunately with all of the time I have taken off from work and will have to take off has taken a toll on us financially. This humbling experience is really hard for Jeremy since he is usually never on the receiving end of anything.
He has always been the guy who offers help to someone without anything expected in return. This fundraising campaign will help offset medical bills, lifelong medications, travel expenses for himself and the rest of the family, and lastly living expenses for the next couple of years until Jeremy gets back on his feet. My hopes are that we can help Jeremy’s road to recovery with lots of love and support. His journey started when he joined the United States Navy and made the selfless act of serving his country, and now it is our turn to rally up and return the favor to this wonderful man I call my husband and father.
My wish for my friends and family and to anybody else that is moved by Jeremy’s story to please forward, and share this campaign to every friend and family member that you know on social media( Facebook, twitter), and also through text. Each and everyone of you are Jeremy’s guardian angels and he thanks you from the bottom of his heart.
One last note, no donation is too small, or too little for this serious fight for survival, and Jeremy is grateful for any thing received. Let’s help find a cure for this nasty disease and help build awareness.
Thank you with humble hearts
Alicia, Jeremy, Paige, Paityn, and Piper