There is no real knowledge of this condition in the UK, few procedures have been performed by a couple of surgeons who are restricted to a single procedure due to cost to the NHS. The procedure Pam had, was performed through a small hole in the mastoid bone behind the ear, which does not allow for very good visualisation of the dehiscence, which is why we believe the surgery failed.
So Pam’s only option to get her life back is brain surgery (craniotomy) with an SSCD expert in USA.
Our family is being torn apart by this condition. Pam’s mental state caused by the debilitating symptoms she experiences 24 /7 is affecting all of our lives. She is a shell of the person she used to be and our children are missing out on having a fully functioning Mother. Pam does her best but there are times when she rages about the symptoms, and other times when she withdraws completely. Some days there are glimpses of the woman I fell in love with; a beautiful vibrant woman and mother but those days are rare.
Please help me get Pam back to the happy fun loving lady she used to be before this horrible condition took over her life and has totally destroyed her. It breaks my heart everyday to see her suffering and our children need their mum back well and happy.
We are asking for $7000 so that we can get Pam all the necessary test from a top SSCD Specialist in USA. After this we will be able to organise a plan and the next step would be the brain surgery she needs.